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Believe M.E. (Horizon Episode for BBC Two) (1988) (Auphonic A.I. Sound Remaster)
Atypical Poliomyelitis (M.E.)
Original YouTube Video: https://youtu.be/8HW1SzHqMhs?si=zw6IiAiu32VyJxLg
"Believe M.E." 1988 BBC Horizon episode on the much maligned, misunderstood, medically ignorant, stigmatised "enteroviral" induced "neurological disease" "Epidemic" Myalgic Encephalomyelitis (M.E.) (aka Enteroviral Encephalomyelitis)
"Epidemic" Myalgic Encephalomyelitis (aka Enteroviral Encephalomyelitis) M.E.
https://www.me-pedia.org/wiki/Epidemic_myalgic_encephalomyelitis
Early Outbreaks of Epidemic Neuromyasthenia - Dr. Gordon Parish (1978)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2425322/
Postviral Fatigue Syndrome (renamed "Chronic Fatigue Syndrome") - 1994 Fukuda "CFS" criteria can overlap the onset of an "enteroviral infection", which may lead to a "persistent enteroviral infection" or "Limbic Encephalitis"
https://me-pedia.org/wiki/Postviral_fatigue_syndrome
Enterovirus
https://me-pedia.org/wiki/Enterovirus
Non-Cytolytic Enterovirus (persistent "Enteroviral" infection)
https://me-pedia.org/wiki/Non-cytolytic_enterovirus#:~:text=Cytolytic%20refers%20to%20destruction%20of,cells%20in%20which%20it%20resides.
Myalgic encephalomyelitis—a persistent enteroviral infection? - Elizabeth Dowsett, Melvin Ramsay (1990)
https://academic.oup.com/pmj/article/66/777/526/7061518?login=false
Selective Serotonin Reuptake Inhibitor Fluoxetine Inhibits Replication of Human Enteroviruses B and D by Targeting Viral Protein 2C - 10mg-a-day (Low-Dose) (2013)
https://journals.asm.org/doi/10.1128/aac.02084-12
The Myalgic Encephalomyelitis Dilemma - Dr. Irving Spurr (Invest In M.E.)
https://www.investinme.org/Article-280%20THE%20MYALGIC%20ENCEPHALOMYELITIS%20DILEMMA.shtml
A GP's experiences of treating "Enteroviral" induced PVFS (aka CFS - Limbic Encephalitis), "Epidemic" M.E. (aka Enteroviral Encephalomyelitis) & The Myalgic Encephalomyelitis Syndrome (persistent Enterovirus Infection) - Dr. Irving Spurr (Invest in M.E.)
https://youtu.be/FfSpAKvN5a8?si=DfXNN5a8chM8prqy
"Epidemic" Myalgic Encephalomyelitis (aka Enteroviral Encephalomyelitis) & Postviral Fatigue Syndrome (aka Encephalitis) Outbreaks
https://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome
Concept of Myalgic Encephalomyelitis (M.E.) (1970) - A "smear attempt" of M.E. Patients as having a Psychological Condition or Function Disorder by Dr. Colin McEvedy & Dr. William Beard (both Psychiatrists) in order that patients, wouldn't be taken seriously by the medical profession, in order to suit Private Medical Insurance Providers
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1700895/
The clinical syndrome variously called Benign Myalgic Encephalomyelitis, Iceland Disease and Epidemic Neuromyasthenia - Donald Acheson (Chief Medical Officer of UK) (1959)
https://www.amjmed.com/article/0002-9343(59)90280-3/abstract
Benign Myalgic Encephalomyelitis - Donald Acheson (Chief Medical Officer of UK) (1957)
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(57)90999-6/fulltext
1955 Cumberland Outbreak - Wallis Study
https://me-pedia.org/wiki/1955_Dalston_outbreak
Investigation into an unusual disease seen in epidemic and sporadic form in a general practice in Cumberland in 1955 & subsequent years - Wallis
https://era.ed.ac.uk/handle/1842/9382
Chest Pain
https://me-pedia.org/wiki/Chest_pain
Lymphadenopathy (Swollen Lymph Nodes)
https://my.clevelandclinic.org/health/symptoms/15219-swollen-lymph-nodes
Myalgia
https://me-pedia.org/wiki/Myalgia#:~:text=It%20requires%20that%20%22there%20is,type%2C%20pattern%20or%20severity.%22
Neurocognitive Dysfunction
https://www.me-pedia.org/wiki/Cognitive_dysfunction#:~:text=Page%20actions&text=Cognitive%20dysfunction%20or%20cognitive%20impairment,patients%20call%20%22fibro%20fog.%22
Muscle Fatigability
https://me-pedia.org/wiki/Muscle_fatigability
Paresthesias (Numbness & Tingling in hands - Sensory distribution of nerves: Dorsal Ulnar Branch)
https://me-pedia.org/wiki/Paresthesia#:~:text=Paresthesia%20ia%20caused%20by%20disruption,caused%20by%20forms%20of%20neuropathy.
Muscle Fasciculations
https://me-pedia.org/wiki/Muscle_fasciculations#:~:text=Muscle%20fasciculations%20or%20muscle%20twitches,weak%20to%20move%20a%20limb.
Muscle Spasm
https://me-pedia.org/wiki/Muscle_spasm#:~:text=Muscle%20spasms%20or%20cramp%2C%20also,look%20hard%20under%20the%20skin.
1955 Royal Free Hospital Outbreak
https://me-pedia.org/wiki/1955_Royal_Free_Hospital_outbreak
Abortive Poliomyelitis
https://me-pedia.org/wiki/Abortive_poliomyelitis
1950 New York State Outbreak
https://me-pedia.org/wiki/1950_New_York_State_outbreak
Coxsackievirus
https://me-pedia.org/wiki/Coxsackievirus#:~:text=Coxsackie%20B%20viruses%20can%20sometimes,epidemic%20and%20sporadic%20myalgic%20encephalomyelitis
1948-49 Akureyri Outbreak
https://me-pedia.org/wiki/1948-49_Akureyri_outbreak
1934 Los Angeles Atypical Polio Outbreak
https://me-pedia.org/wiki/1934_Los_Angeles_atypical_polio_outbreak
Polio (Cleveland Clinic)
https://my.clevelandclinic.org/health/diseases/15655-polio
Featuring Jimmy Hood MP of Clydesdale, Scotland, Hilary McLennan (M.E. Patient), P.K. Thomas (Professor of Neurology, Arrogant, Medically Ignorant, Gaslighter, Patient Blamer & Disbelieving), Dr. Winifred Watson (Hilary McLennan's GP), Michael Mayne (M.E. Patient & Dean of Westminster), Molly Champion (M.E. Patient), Sheila Neal (Nurse at the Royal Free Hospital during the 1955 outbreak, who was struck by the virus), Dr. Melvin Ramsay (Infectious Diseases), Dr. Anthony Pelosi (CFS Psychiatrist & Patient Blamer), Dr. Len Achard (Senior Lecturer in Biochemistry), Professor James Mowbray (Professor of Immunopathology), Dr. Colin McEvedy (Psychiatrist & Misogynist), Jack Ashley MP of Stoke-on-Trent, Dr. William Weir (PVFS & M.E. Specialist)
Studies
Postviral Fatigue Syndrome: Persistence of Enterovirus RNA in Muscle and Elevated Creatine Kinase - L.C. Archard, PhD, N.E. Bowles, BSc, P.O. Behan, MD FRCP, E.J. Bell, PhD MRCPath, D Doyle, MD (1988)
https://journals.sagepub.com/doi/10.1177/014107688808100608?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed
Derivation and Biochemical Characterization of an Enterovirus Group-Specific Monoclonal Antibody (1987)
https://karger.com/int/article-abstract/28/3/163/176768/Derivation-and-Biochemical-Characterization-of-an?redirectedFrom=fulltext
Original YouTube Video
https://m.youtube.com/watch?fbclid=IwAR1mHAb1F93Aup_VJtqQusR9rL_N0Sz3zBs97s5EnSvC-9GclnFuCf-I330&v=8HW1SzHqMhs&feature=youtu.be
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Dr. Anne MacIntyre's Frontline episode on "Myalgic Encephalomyelitis" (1993) (Auphonic A.I. Sound Remaster)
Atypical Poliomyelitis (M.E.)
Original YouTube Video: https://youtu.be/lINkStCj3rs?si=M3Bb8G6KzCAe6YDB
1993 Channel 4 Frontline Show, narrated by Dr. Anne MacIntyre (M.E. Patient) on the much maligned, misunderstood, medically ignorant, stigmatised "enteroviral" induced "neurological disease" "Epidemic" Myalgic Encephalomyelitis (M.E.) (aka Enteroviral Encephalomyelitis)
TRANSCRIPT OF FRONTLINE DOCUMENTARY ON M.E. FROM 1993 on CHANNEL 4
https://www.blogistan.co.uk/blog/articles/transcript_of_frontline_documentary_on_me_from_1993
"Epidemic" Myalgic Encephalomyelitis (aka Enteroviral Encephalomyelitis) M.E.
https://www.me-pedia.org/wiki/Epidemic_myalgic_encephalomyelitis
"ENCEPHALOMYELITIS" RESEMBLING "EPIDEMIC" MYALGIC ENCEPHALOMYELITIS (M.E.)
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(70)91097-4/fulltext
1955 Royal Free Hospital outbreak
https://me-pedia.org/wiki/1955_Royal_Free_Hospital_outbreak
Enterovirus
https://me-pedia.org/wiki/Enterovirus
Dysautonomia (aka Autonomic Disorder / Dysfunction)
https://me-pedia.org/wiki/Dysautonomia
Featuring Dr. Anne MacIntyre (M.E. Patient), Lynn Gilderdale (M.E. Patient), Kay Gilderdale (Lynn Gilderdale's Mother), Richard Gilderdale (Lynn Gilderdale's Father) Dr. Peter Hudgson (Arrogant Misogynist & Neurologist), Jackie Macklin (M.E. Patient), Dr. Durval Costa (SPECT Scan Expert), Professor James Mowbray (Immunopathology Expert), Rosemary Hewett (M.E. & Royal Free Patient), Neville Hodgkinson (Sunday Times Science Correspondent Journalist), brainwashed by the likes of Stephen Straus & Simon Wessely, Ean Proctor (M.E. Patient)
https://me-pedia.org/wiki/Anne_MacIntyre
Mononucleosis-like syndrome associated with a multisystem Coxsackie virus type B3 infection in adolescence (Anne MacIntyre's illness started with a throat infection (pharyngitis), which may have been some what similar to this, which leads to "Meningoencephalomyelitis" aka "Epidemic" M.E.) (1988)
https://link.springer.com/article/10.1007/BF00496427
Thorsons Health - M.E.: Chronic Fatigue Syndrome: A Practical Guide - Dr. Anne MacIntyre (1998)
https://me-pedia.org/wiki/Thorsons_Health_-_M.E.:_Chronic_Fatigue_Syndrome:_A_Practical_Guide
https://me-pedia.org/wiki/Lynn_Gilderdale
One Last Goodbye - Kay Gilderdale (2011)
https://me-pedia.org/wiki/One_Last_Goodbye
https://me-pedia.org/wiki/James_Mowbray
Post-Viral Fatigue Syndrome (Myalgic Encephalomyelitis) - Professor James Mowbray & Rachel Jenkins (1992)
https://me-pedia.org/wiki/Post-Viral_Fatigue_Syndrome_(book)
https://me-pedia.org/wiki/Ean_Proctor
Misattributions and the Consequences
Ean's Story
Interaction, Issue 3 Autumn 1989 - Barbara Proctor, Mother of Ean Proctor (Child M.E. Patient)
http://web.archive.org/web/20170222013527/http://www.ahmf.org/ww-ean.html
https://me-pedia.org/wiki/Simon_Wessely
https://me-pedia.org/wiki/Stephen_Straus
Studies
Dr. Durval Costa (Radiographer)
https://www.researchgate.net/publication/312715319_Chronic_Fatigue_SyndromeMyalgic_Encephalomyelitis
https://www.researchgate.net/publication/249887061_Relationship_between_SPECT_scans_and_buspirone_tests_in_patients_with_MECFS
https://www.researchgate.net/publication/13937772_Brain_MR_in_chronic_fatigue_syndrome
https://www.researchgate.net/publication/14658768_Brainstem_perfusion_is_impaired_in_chronic_fatigue_syndrome
https://www.researchgate.net/publication/323515785_Myalgic_encephalomyelitis_chronic_fatigue_syndrome_brainstem_SPECT_and_MRI_evaluation
https://www.researchgate.net/publication/14994308_Chronic_fatigue_syndrome_Preliminary_report_misrepresented
https://www.researchgate.net/publication/239996870_101_Brain_stem_SPET_studies_in_normals_MECFS_and_depression
https://www.researchgate.net/publication/21527799_Postviral_fatigue_syndrome
https://www.researchgate.net/publication/239996353_50_rCBFSPET_in_patients_with_myalgic_encephalomyelitis
Professor James Mowbray (Professor of Immunopathology)
https://karger.com/int/article-abstract/28/3/163/176768/Derivation-and-Biochemical-Characterization-of-an?redirectedFrom=fulltext
https://karger.com/int/article-abstract/28/4/199/176803/Clinical-and-Research-Application-of-an?redirectedFrom=fulltext
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(88)92722-5/fulltext
https://www.researchgate.net/publication/20321575_Clinical_and_research_application_of_an_enterovirus_group-reactive_monoclonal_antibody_With_2_colour_plates
https://www.researchgate.net/publication/21432189_Immunology_of_postviral_fatigue_syndrome
https://www.researchgate.net/publication/20994857_Detection_of_enteroviral-specific_RNA_sequence_in_muscle_biopsy_specimens_from_patients_with_adult-onset_myositis
https://www.researchgate.net/publication/20306590_Detection_of_enterovirus_RNA_in_experimentally_infected_mice_by_molecular_hybridisation_Specificity_of_subgenomic_probes_in_quantitative_slot_blot_and_in_situ_hybridisation
https://www.researchgate.net/publication/21823956_Equine_Fatigue_Syndrome
Original YouTube Video
https://youtu.be/lINkStCj3rs?si=CM1Ma4cW7AS1X--T
I Helped My Daughter Die | Real Stories (Panorama) with Jeremy Vine
(Show on Assisted Suicide on Lynn Gilderdale) (2019)
https://youtu.be/WTrsfzhcNlk?si=qlqsm3FQTosA4v52
Voices From The Shadows (2011 film on Myalgic Encephalomyelitis - M.E.)
https://voicesfromtheshadowsfilm.co.uk/
Sick and Tired - BBC Panorama (November 1999) | Documentary on the mistreatment of children with M.E. or *undiagnosed* CFS illnesses
Atypical Poliomyelitis (M.E.)
YouTube link :
https://youtu.be/SHhU1EA2vcI?si=-EUU2-Jtzyufow-a
"Panorama reveals the results of an exclusively commissioned survey which shows children [with ME/CFS] are being pressurised into accepting psychological treatment which may, or may not be, appropriate." (http://news.bbc.co.uk/...)
First aired: Monday 8 November 1999
Reporter: Matthew Hill
Producer: Fiona Campbell
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Sick and Tired - Incline Village Outbreak (PrimeTime Live, ABC TV News Magazine) (A.I. Remastered Sound) (1996)
Atypical Poliomyelitis (M.E.)
Sick and Tired - Incline Village Outbreak (PrimeTime Live, ABC TV News Magazine (1996)
https://me-pedia.org/wiki/Sick_and_Tired_-_Incline_Village_Outbreak
An ABC TV news magazine, PrimeTime Live, hosted in the US by Sam Donaldson and Diane Sawyer, aired a 12 minute segment in 1996 entitled, "Sick and Tired", about the 1984 outbreak of CFS in Incline Village, Nevada, and the subsequent failure of the federal government to investigate the cause or a possible cure.
The renewed interest in the (by then) twelve year old epidemic was prompted by the release of Hillary Johnson's 1996, skilfully researched book, Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic.
Featured in the news segment was Dr. Paul Cheney, Dr. Daniel Peterson, Dr. David Bell, Dr. Elaine DeFreitas, author Hillary Johnson, HHS Assistant Secretary for Health, Dr. Philip Lee, NIH director, Stephen Straus, and several patients.
Hillary Johnson's website:
https://www.oslersweb.com/
Hillary Johnson's books on subject:
The Why: The Historic M.E. & CFS Call To Arms (2023)
https://www.amazon.co.uk/dp/B0C5FQZ4V1?ref=cm_sw_r_apan_dp_T705SSXX3HYXW7WQ4HXM&ref_=cm_sw_r_apan_dp_T705SSXX3HYXW7WQ4HXM&social_share=cm_sw_r_apan_dp_T705SSXX3HYXW7WQ4HXM&language=en-GB
Osler's Web: Inside the Labyrinth of the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) Epidemic (1996)
https://www.amazon.co.uk/dp/051770353X?ref=cm_sw_r_apan_dp_9TC4BF7JR82YSNV52FST&ref_=cm_sw_r_apan_dp_9TC4BF7JR82YSNV52FST&social_share=cm_sw_r_apan_dp_9TC4BF7JR82YSNV52FST&language=en-GB
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"Kilroy" show on "Acute" Postviral Fatigue Syndrome (PVFS) & "Epidemic" Myalgic Encephalomyelitis (M.E.) with Robert Kilroy-Silk (A.I. Sound Remastered)
Atypical Poliomyelitis (M.E.)
Featuring Jane Colby, Dr. Anne MacIntyre, Dr. Charles Shepherd, Dr. Peter Hudgson (Neurologist, Newcastle General Hospital), Psychiatrist Peter White, Nicky Campbell (Talks about wife with M.E.)
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comment
Sick and Tired - BBC Panorama (November 1999) | Documentary on the mistreatment of children with M.E. or *undiagnosed* CFS illnesses
2 months ago
YouTube link :
https://youtu.be/SHhU1EA2vcI?si=-EUU2-Jtzyufow-a
"Panorama reveals the results of an exclusively commissioned survey which shows children [with ME/CFS] are being pressurised into accepting psychological treatment which may, or may not be, appropriate." (http://news.bbc.co.uk/...)
First aired: Monday 8 November 1999
Reporter: Matthew Hill
Producer: Fiona Campbell
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