LauraineAnn

This is just to update everyone on the situation at present. So I got Jax back in 27 August 2023 and I then changed hospitals to QCH Queensland children’s hospital with the help of my lawyer at the time. 27 November 2023 when we first arrived at QCH. Since transferring to this hospital they have continued with the same treatment as PCH Perth Children’s Hospital and continue to ignore me concerns and worries about Jaxs care. PCH still refusing to give QCH Jax’s entire file. I then finally got Jax an MRI at cairns base hospital as I told them that I feel like I’m not being listened to and I’m not leaving until they get him in for the MRI and within 10 minutes had Jax ready for the MRI. Once the MRI had been done I found out that Jax has Leukoencephalopathy which means white matter disease it is induced by high dosages of methotrexate. Which is a chemo drug. I also found out that he has a AVM and a cavanoma that has already microhemorrhage. I was told by the QCH doctor that this leukoencephalopathy might go away it might not it might get better it might not. This wasn’t a good enough answer for me so I sought for something better than this and I found a private dr in Victoria who after seeing jaxs MRI results wanted to start intensive therapy to see if it would help in any way. So I took Jax to Melbourne to see this dr and he started jaxs on 3 days a week acupuncture and Chinese herbal medicine which jaxs was to drink 3 times a day. We all seen improvement almost instantly jaxs went from needing to be pushed in a wheelchair to being able to walk properly and running again its not the best but he’s getting there he stated putting on weight growing his hair and just better all over talking better again and finally getting a control on his outbursts. And in the background the department never left us alone. And they again came but not just for Jax this time they came for his little brother abble.