Atypical Facial Pain, Trigeminal Neuralgia, Nerve Pain, My Story Of Pain And How I Handel It.

Atypical Facial Pain, Trigeminal Neuralgia, and Nerve Pain in the face and head. I developed atypical facial pain one day and I had to learn how to handle living with the pain. My story took 5 months from my first facial pain attack until I was able to return to my life. I did not make this video because I want sympathy from anyone. I made this video for educational purposes. I hope that I can help someone that is dealing with pain the way I was because they watched my story.

My apology: I want to apologies that this video is 2 hours long, and during the video I say "um", "so", "and" a lot. I tried to remove as many of these as possible!

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Cleveland Clinic Website:
https://my.clevelandclinic.org/

Websites with information about facial pain:

https://facingfacialpain.org/

https://www.facepain.org/

https://www.karger.com/Article/FullText/505727

https://www.ninds.nih.gov/Disorders/All-Disorders/Trigeminal-Neuralgia-Information-Page

https://www.ohsu.edu/brain-institute/facial-pain-trigeminal-neuralgia

Chapters
0:00 Intro
6:26 When It all started ER visit #1
17:42 The most painful day of my life ER visits #2 & #3
40:32 How I explain the pain I feel
46:41 What is "suicided disease"
48:30 More Doctor Appointments
51:00 What Is TN and Shingles
57:30 Neurologist
1:01:33 "Its Normal"
1:04:11 Neuro Surgeon
1:06:30 What is a nerve block?
1:08:09 ER visit #4
1:15:03 My meds and the side effects
1:21:25 Nerve block procedure
1:25:17 What is a "MVD"
1:35:40 I need to see a specialist
1:36:57 Cleveland Clinic consultation
1:39:44 Having a "RFA" procedure done
1:46:41 What the "RFA" dose
1:48:34 Reducing my meds
1:52:42 Final thoughts

These are the medications I was on during my experience.

Meds I take for my IBSD, I was taking these meds before my face pain.

Pantoprazole 40mg 1 time a day

Sucralfate 1gm 4 times a day

Meds I was taking for pain by prescription.

Gabapentin 800mg 3 times a day for 2400mg total daily

Trileptal (OXcarbazepine) 300mg 6 a day for 1800mg daily

Norco (hydrocod/acetam) 5-325mg up to 3 times a day

Cymbalta (DULoxetine) 60mg 1 time a day

Lidocaine patch 5%

Over the counter meds I was taking to counteract the constipation from the pain meds.

Docusate Sodium (stool softener) 100mg up to 3 a day
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Dulcolax 5mg tablet up to 3 a day
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Gas-X up to 3 chewable tablets a day
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Lidocaine cream 4%
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Meds I could take for upset stomach as needed by prescription.

Promethazine syrup 5 to 10 ml every 4-6 hours for nausea and vomiting

Dicyclomine 10mg 1 pill up to 3 times a day for cramps

Ondansetron 4mg 1 pill every 6 hours as needed for vomiting

This video was recorded on my Moto Z4 cell phone.
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Tripod
https://amzn.to/3JIaeA6

Dry erase markers
https://amzn.to/3G4QsNd

Dry erase board
https://www.menards.com/main/building-materials/panel-products/handi-panels/3-16-x-2-x-4-dry-erase-handi-panel/1291200/p-1444431325265-c-13337.htm?tid=7395385606801843815&ipos=1

Tazer
https://amzn.to/3zC7Lmo

Propane torch
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Propane gas
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3lb hammer
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vacuum sealer
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Video edited with Shotcut
https://shotcut.org/