The Family Whose Faces Change Shape | BORN DIFFERENT

3 years ago
19

A FAMILY in North Sumatra, Indonesia, are living with a rare condition that causes their faces to change shape. Out of the six children of the Manurung family, four of them are living with an undiagnosed and incredibly rare facial condition. Suyra told Truly: “The fact is, our faces they have changed shape but we accept it and just live with it. In my opinion, growing up with this condition made me feel inferior. But now, I don’t feel like that anymore.” Despite many suggesting the family had been cursed, they have realised their condition must be genetic, as their father is also affected. The family are yet to visit a doctor for any diagnosis and, due to the unusual nature of their looks, they have had to get used to people reacting negatively to their appearance. Suyra continued: “When we walk around our village we don’t have any problems. No one makes fun of us. No one insults us in our village. But if we leave here and go out of town, people who’ve never seen us before, they look surprised when they do.”
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