Tiny 31-Inch Boy With Primordial Dwarfism Defies Doctors | BORN DIFFERENT

3 years ago
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A FIVE-YEAR-OLD boy with a rare form of dwarfism has defied doctors' predictions that he would never walk. Jonathan Kremer, from Hadamar, Germany, is one of only 200 people worldwide with Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1). Tiny Jonathan stands at only 80cm (31.5 inches) tall and has the prominent eyes and nose characteristic of the condition. Doctors realised during pregnancy that Jonathan wasn’t growing like a healthy child, but didn’t know why. “I was frightened, he was so small,” Jonathan’s mother Simone said. “A couple of weeks after he was born, they told us that he would never learn to crawl, to walk, to talk, to eat from a spoon or even reach his first birthday.” But after connecting with specialists on MOPD1 and learning more about the condition, Simone is now the founder of the 'Walking with Giants Germany', an organisation bringing together the families of those suffering from primordial dwarfism in Germany - and Jonathan is a happy little boy playing on his stroller and riding horses as part of his riding therapy. Jonathan's father Andreas said: "Jonathan loves the horses and riding them. He has proven the doctors wrong, he’s already five years old, he’s crawling, laughing, eating and smiling - everything they expected him not to do.”
Instagram: https://www.instagram.com/jonathan_ein_leben_mit_mopd1/

Facebook: https://www.facebook.com/JonathansStory

Walking With Giants:
https://walkingwithgiants.de/
https://www.walkingwithgiants.org/
https://stichtingwalkingwithgiants.nl/

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