NKH - One of the Rarest Genetic Diseases on the Planet, My Grandson Has It.
4 years ago
3
Nonketotic Hyperglycinemia (NKH) is one of the rarest genetic diseases on the planet, and my grandson has it. Leah explains what NKH is and how we found out that little Jack Robert, born June 21, 2020 has it. Jack Robert is involved in several studies, one with Dr. Johan Van Hove MD, PhD who specializes in Medical Genetics and is the leading researcher for NKH since1991. Jack Robert is also involved in Precision Ketogenic Therapy with the University of Florida.
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