Understanding End of Life Doulas Synergy with Hospice and Palliative Care

This episode discusses the value of end-of-life doulas and how they fill the gaps of hospice and palliative care. LindaGale4277 asked for this discussion, and I'm grateful to her and others who have input on what they would like to discuss and see/hear.

I invited Kacie Gikonyo, who owns and operates Death Doula School, to comment on this video. She has valuable experience and wisdom to share.

Articles of Value:
https://people.com/death-doula-helps-clients-cope-with-death-and-turns-legacies-into-gifts-exclusive-11688664
https://www.linkedin.com/in/kacie-gikonyo/
https://compassioncrossing.info/the-rising-significance-of-end-of-life-doulas-in-hospice-care/

Facebook Groups:
https://www.facebook.com/groups/219794168457380
https://www.facebook.com/groups/1139174696775395/

Good Resources:
INELDA: Training and advocacy (INELDA, 2021).
NEDA: Ethics guidelines and provider directory (NEDA, 2023).
NHPCO: Guides on doula-hospice collaboration (NHPCO, 2022).
Academic research: Journal of Palliative Medicine (Harris, 2021).
The Dying Year: Mentorship tools (Thompson, 2021).

References for today's discussion:
Davis, M., Johnson, L., & Smith, R. (2019). The practical role of end-of-life doulas in modern healthcare. Journal of Hospice Care, 12(4), 112–125.
Green, T. (2022). Media representation and the normalization of death doula work. Social Media & Society, 8(2), 45–60.
Harris, A. (2021). Baby boomers and the demand for personalized end-of-life care. Aging Today, 44(3), 15–19.
Hospice Analytics. (2023). 2023 National hospice collaboration survey. https://hospiceanalytics.com
Hudson Valley Hospice. (2022). Annual report on caregiver burnout reduction. https://hudsonvalleyhospice.org
INELDA. (2021). Core competencies for end-of-life doulas. https://inelda.org
Jenkinson, S. (2008). Die wise: A manifesto for sanity and soul. North Atlantic Books.
Johnson, L. (2022). Spiritual care in end-of-life doula practice. Journal of Palliative Medicine, 25(7), 1023–1030.
Kubler-Ross, E. (1969). On death and dying. Macmillan.
Lee, K., & Carter, M. (2023). Doula-hospice partnerships: A case study. Journal of Integrative Care, 17(1), 33–40.
National End-of-Life Doula Alliance (NEDA). (2023). Proficiency badge requirements. https://nedalliance.org
National Hospice and Palliative Care Organization (NHPCO). (2022). Doulas and hospice: A guide to collaboration. https://nhpco.org
Robinson, P. (2023). The impact of COVID-19 on end-of-life care trends. Health Affairs, 42(5), 678–685.
Smith, J., & Patel, R. (2023). Certification debates in end-of-life doula work. Healthcare Ethics, 19(2), 89–94.
Thompson, E. (2021). Building a sustainable doula practice. The Dying Year Press.
University of Vermont. (2023). End-of-life doula training program enrollment data. https://learn.uvm.edu
Williams, S. (2020). Emotional labor in end-of-life care. Nursing Ethics, 27(4), 899–910.

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I write free articles about end-of-life and related topics at https://compassioncrossing.info/ and have written multiple books to educate others about end-of-life and associated topics at https://amzn.to/3YFBYQ0

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