My Son is Paralyzed in Rehab with a Tracheostomy, Can He Go Home with INTENSIVE CARE AT HOME?

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My Son is Paralyzed in Rehab with a Tracheostomy, Can He Go Home with INTENSIVE CARE AT HOME?

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies at home and where we also provide tailor-made solutions for hospitals and intensive care units at home whilst providing quality care for long-term ventilated adults and children with tracheostomies at home, otherwise medically complex clients, adults and children at home, which includes Home BIPAP (Bilevel Positive Airway Pressure), Home CPAP (Continuous Positive Airway Pressure), home tracheostomy care for adults and children that are not ventilated, Home TPN (Total Parenteral Nutrition), home IV potassium infusions, home IV magnesium infusions and home IV antibiotics. We also provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management as well as Hickman’s line management, and we also provide palliative care at home.

We are also sending our critical care nurses into the home for emergency department bypass services as we have done in the past for the Western Sydney Local Area Health District, their in-touch program.

So today, I have an email from Dawn who says,

“My son is 25 years of age, and he is in a rehabilitation facility at the moment with the tracheostomy. He has spent months in ICU. My son is paralyzed from the waist down and he’s still tracheostomy dependent. It was supposed to be weaned off 12 months ago, but currently, they’re saying he can’t be weaned off the tracheostomy.

Now, I went to visit my son in the rehabilitation facility and his room was disgusting, and he tells me how bad he’s being treated in the rehabilitation facility. Now, my son is there for two hours away from my home. Is there any way that Intensive Care at Home can help me to get him home?

I’m a desperate mom that needs her son closer to home and taken care of properly.”

Well, Dawn, I’m very sorry to hear about your son’s situation. It’s not unusual that we see this. We see it all the time that once patients leave ICU with a tracheostomy, that no matter where patients go, whether it’s a rehab facility, whether it’s a hospital ward or a hospital floor, that they’re not being looked after properly. I can understand how scary this must be for you as a mother and how scary this would be for your son.

So, it’s really good from you that you reach out to us because that is exactly what we do. All we do is look after adults and children at home that are either ventilated and/or have a tracheostomy, that’s all we do. We are highly specialized in that, and we also have third party accreditation for it.

I can see from your email that you are located in Australia. We are currently operating all around Australia in all major capital cities and in all regional and rural areas. Given that your son is 25 years of age, he would also qualify for NDIS (National Disability Insurance Scheme) funding. So, your situation might not be as desperate as you think it is. It sounds to me like you just haven’t met the right people yet and you just haven’t engaged with the right people yet that can help your son with this very unfortunate and potentially desperate situation.

The biggest challenge in those situations is always that people don’t know what they don’t know. They don’t know what to look for. They don’t know what questions to ask. They don’t know their rights and they don’t know how to manage the hospital system or the NDIS system, for that matter.

Continue reading at: https://intensivecareathome.com/my-son-is-paralyzed-in-rehab-with-a-tracheostomy-can-he-go-home-with-intensive-care-at-home/