How INTENSIVE CARE AT HOME Advocates for a Tracheostomy for Ventilated Adults and Children in ICU!

https://intensivecareathome.com/how-intensive-care-at-home-advocates-for-a-tracheostomy-for-ventilated-adults-and-children-in-icu/

How INTENSIVE CARE AT HOME Advocates for a Tracheostomy for Ventilated Adults and Children in ICU!

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If you want to know how we can advocate for you and your family member if your family member needs a tracheostomy and the hospital doesn’t want to give it to you, stay tuned! I will answer that question for you today.

My name is Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality services for long-term ventilated adults and children with tracheostomies, also otherwise medically complex adults and children at home including Home BIPAP (Bilevel Positive Airway Pressure), Home CPAP (Continuous Positive Airway Pressure), home tracheostomy care when adults and children are not ventilated or Home TPN (Total Parenteral Nutrition). We also provide IV potassium, IV magnesium infusions at home as well as IV antibiotic infusions at home. We also provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management, Hickman’s line management as well as palliative care services at home, which includes ventilator weaning at home.

Today, I want to talk about some of the advocacy that we are doing for our clients and their families. So, here’s the situation. There was a client who has cerebral palsy was on BIPAP at home but needed to go into hospital with pneumonia, ended up in intensive care. The intensive care team was quite adamant that they should just withdraw treatment to remove the BIPAP and let him die. Obviously, the family didn’t want that. He’s a young man with cerebral palsy and has lived a good quality of life to this point. The family reached out to us knowing that tracheostomy might be an option for him, and that if he has a tracheostomy, that life could be prolonged, and quality of life could be prolonged with a service like ours which is accurate.

We have clients at home with cerebral palsy, ventilation, tracheostomy with 24-hour nursing care, mainly funded through the NDIS (National Disability Insurance Scheme) and some hospitals simply don’t know enough about the (a) NDIS and they don’t know enough about our (b) service. They don’t understand how it works. They don’t understand that we can actually replicate an intensive care bed in the community for long-term ventilated adults and children with tracheostomies. So, what we did obviously, we educated the hospital and the ICU about our service and about what the NDIS is funding with the right advocacy, with the right evidence because our services are evidence-based.

You can look that up on our evidence-based section at intensivecareathome.com and you can look it up on the Mechanical Home Ventilation Guidelines which sets the standards in the community, which sets best practice in the community when it comes to long term ventilation and tracheostomy for adults and for children. Lo and behold, the hospital then, of course, agreed to put in a tracheostomy for this young man and he’s been having a tracheostomy and the ventilator since then. He’s living a very good life in the community with NDIS funding.

So, that is how we can advocate for you and your family as well because you might have a family member in intensive care now and you may be wondering, should they have a tracheostomy? Should they not have a tracheostomy?

Continue reading at: https://intensivecareathome.com/how-intensive-care-at-home-advocates-for-a-tracheostomy-for-ventilated-adults-and-children-in-icu/