NDIS Funding Has Been Cut, Is She Going to Die? How Can INTENSIVE CARE AT HOME Help?

https://intensivecareathome.com/3-year-old-koas-ndis-national-disability-insurance-scheme-funding-has-been-cut-is-she-going-to-die-how-can-intensive-care-at-home-help/

3-Year-Old Koa's NDIS Funding Has Been Cut, Is She Going to Die? How Can INTENSIVE CARE AT HOME Help?

See this link for more information:
https://www.2gb.com/she-will-die-kids-punished-in-shock-ndis-funding-cut/

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term, ventilated adults and children with tracheostomies and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality services for long-term ventilated adults and children with tracheostomies, also otherwise medically complex adults and children at home including Home BIPAP (bilevel positive airway pressure), Home CPAP (continuous positive airway pressure), also home tracheostomy care when adults and children are not ventilated. We also provide Home TPN (total parenteral nutrition) which is home intravenous nutrition. We provide IV potassium, IV magnesium infusions at home, as well as IV antibiotic infusions at home. We also provide port management, central line management, PICC (peripherally Inserted Central Catheter) line management, Hickman’s line management, as well as palliative care services at home and that also includes ventilation weaning at home.

We also send our critical care nurses into the home for emergency bypass services which we’ve done for the Western Sydney Local Area Health District in touch program as part of a successful tender in the past where we avoid ED or emergency department presentations.

Now, today I want to comment about a case of the NDIS (National Disability Insurance Scheme) where there were recent funding cuts and I just want to play a media report. While some of it might be really distressing, but it just illustrates what’s going on at the moment, and I think people need to know about it and they also need to know that we are a solution for this here at Intensive Care at Home.

Let’s just play the media report of a little girl who had their nursing funding cut from the NDIS. So, let’s just play this from Ben Fordham from 2GB Radio:

“The crunch is coming for the National Disability Insurance Scheme. After letting the cost of the NDIS explode, they’re now trying to contain the extent of the damage. Families are receiving phone calls and they’re having their funding cut, and here’s why.

In recent years we’ve allowed people to charge all sorts of weird and wacky stuff onto the NDIS, from brothel visits to luxury cruises. And now we can’t afford the vital care that people really need.

Alicia writes, ‘The NDIS couldn’t even afford my family, the decency to speak to me. Instead, they emailed my support coordinator at 4:59 p.m. Her three-year-old daughter, Koa, has an incurable brain disorder and the NDIS has just decided to swing the ax on her support.

Now, what I’m about to play you is distressing, but this is how Koa’s sister, Ava, reacted when she heard what was happening to Koa.

‘She doesn’t live without all this help,’ she said.

‘Will Koa even survive without all this help?’ That’s her sister.

According to Koa’s mum, the NDIS has now taken away nursing supports, a wheelchair accessible vehicle, music therapy, and hydrotherapy. Alicia writes, ‘The biggest cut is to nursing support. They’ve done this to my little girl who experienced more than 120 seizures in one month and who relies on oxygen for life support to stay alive. Her sister is worried that all of these things are being taken away.

Continue reading at: https://intensivecareathome.com/3-year-old-koas-ndis-national-disability-insurance-scheme-funding-has-been-cut-is-she-going-to-die-how-can-intensive-care-at-home-help/