Long-Term Ventilation and/or Tracheostomy at Home! How to Improve Insufficient Support at Home!

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Long-Term Ventilation and/or Tracheostomy at Home! How to Improve Insufficient Support at Home!

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term, ventilated adults and children with tracheostomies and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality services for long-term ventilated adults and children with tracheostomies, also otherwise medically complex adults and children at home including Home BIPAP, Home CPAP, home tracheostomy care when adults and children are not ventilated, also Home TPN (total parenteral nutrition). We also provide IV potassium, IV magnesium infusions at home, as well as IV antibiotic infusions at home. We also provide port management, Hickman’s line management as well as palliative care services at home, and that also include ventilation weaning at home.

In today’s video, I want to talk about the clients that are at home already with a ventilator, with the tracheostomy but don’t have the right level of support, so case in point. Having been in the Intensive Care at Home space for over a decade now here in Australia, but also having been in the Intensive Care at Home space nearly 25 years ago in Germany, I have a fair bit of insight into this world.

We are getting phone calls all the time where clients are at home on a ventilator with the tracheostomy, but they don’t have the right level of support i.e. they don’t have intensive care nurses 24 hours a day, which in many instances has simply been a death sentence, or clients go back to hospital all the time.

So, once again, case in point. This week, I had a phone call from a prospective client who we’ve been engaging with for the last few months. His wife is at home on a ventilator with a tracheostomy for a rare neurological condition and he doesn’t have the support he needs. We are helping him currently with the advocacy process with the NDIS (National Disability Insurance Scheme). But the bottom line is, he ended up taking his wife to hospital this week because simply, the support workers that he’s got there cannot manage ventilator, tracheostomy, and in this instance, the oxygen saturation dropped. His wife had multiple secretions. He needed to suction her every five minutes, and that’s simply not the scope of a family member or a support worker, it’s the scope of an intensive care nurse.

So, he ended up taking her to hospital because the NDIS, in many cases, lets people down and it’s trying to send support workers and then patients end up back in hospital all the time, that’s one of the better scenarios. But the reality is, we know of at least 7 patients in the last 10 years that have passed away at home because they didn’t have funding for 24-hour intensive care nurses, which by the way is also evidence-based. So, we’re not making this up because we’re running Intensive Care at Home, there’s actually evidence behind it.

So, if you go to our website, intensivecareathome.com, there’s a section on the website, the Mechanical Home Ventilation Guidelines, which are evidence based. Those Mechanical Home Ventilation Guidelines are a result of nearly 25 years of Intensive Care at Home nursing in Germany and nearly over 10 years Intensive Care at Home nursing in Australia. So, the bottom line is there’s actually evidence.

Continue reading at: https://intensivecareathome.com/long-term-ventilation-and-or-tracheostomy-at-home-how-to-improve-insufficient-support-at-home/