Can My Baby Son with Ventilation, Tracheostomy&Nasogastric Tube Go Home in Brisbane Instead of PICU?

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Can My Baby Son with Ventilation, Tracheostomy & Nasogastric Tube Go Home in Brisbane Instead of PICU?

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies. We also provide tailor-made solutions for hospitals and intensive care units whilst providing quality care for long-term ventilated adults and children with tracheostomies, medically complex patients at home, including Home TPN, Home IV potassium infusions, Home BIPAP (bilevel positive airway pressure), CPAP (continuous positive airway) pressure), home tracheostomy care for adults and children that are not ventilated. We provide IV antibiotics at home. We provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management, as well as Hickman’s line management. We also provide services for palliative care at home. In essence, we are providing a genuine alternative for a long term stay in intensive care.

Today, I want to answer a question from Lillian in Brisbane who says,

“Hi Patrik,

Do you look after infants at home with long-term mechanical ventilation with tracheostomy and nasogastric tube? My son, Homer, is confined to PICU and we want to take him home. Is this something you do? Is this something that is NDIS (National Disability Insurance Scheme) funded? Can you please help?” Absolutely, Lillian. This is bread and butter for us.

We have looked after many infants and toddlers at home on long-term ventilation with tracheostomy, either with nasogastric tubes or with PEG (Percutaneous Endoscopic Gastrostomy) tubes, it’s definitely something that we can do. Also, the NDIS is funding pretty much all of our clients for 24-hour nursing care, it just needs to go through the right advocacy process. You will need a good NDIS Specialist Support Coordinator here, which we have on our team. We also have NDIS Specialist Support Coordination on our team.

We will find the right people for you, the right PICU (Pediatric Intensive Care Unit), NICU (Neonatal Intensive Care Unit), or ICU nurses that can look after your son at home. We know that it’s very important for you to have the right people coming into your home so that you feel safe, your son feels safe, to provide a nurturing environment, so that gets your son out of ICU and out of pediatric ICU and go home. We are helping you with that transition. We manage and help you organize equipment if the hospital can’t do that, but really the crux of the matter here is that you need the right people at home, compassionate people, reliable people that have the skills and the expertise taking your son home if he’s ventilated, he’s got a tracheostomy and the nasogastric tube.

So, that’s really it in a nutshell because I understand you and your family probably have no quality of life by staying in intensive care forever in the day. The ICU surely needs the ICU bed, and again, it’s a win-win situation that we are providing. Hopefully, your son can also go at some point to kindergarten, and the ventilator and the tracheostomy won’t stop him from doing that. We have taken kids to school, kindy, all of the above, and it’s really important that you get out of ICU, that you can see a world beyond the ICU for your little son.

Continue reading at: https://intensivecareathome.com/can-my-baby-son-with-ventilation-tracheostomy-nasogastric-tube-go-home-in-brisbane-instead-of-picu-pediatric-intensive-care-unit/