Why a tracheostomy and ventilation improves the quality of life for MND(motor neuron disease)!

9 months ago
21

https://intensivecareathome.com/why-a-tracheostomy-and-ventilation-improves-the-quality-of-life-for-mnd-motor-neuron-disease/

Why tracheostomy ventilation and INTENSIVE CARE AT HOME improves the quality of life for MND(motor neuron disease)!
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Hi, it’s Patrik Hutzel from Intensive Care at Home with a quick tip for families in intensive care and with a quick tip for patients with motor neuron disease (MND) or ALS (Amyotrophic Lateral Sclerosis).

So, we’re currently dealing with an inquiry where there is a client at home with motor neuron disease. The client is in his mid-fifties and he’s been diagnosed with motor neuron disease around two years ago. Obviously, there is a gradual functional decline in MND patients and decline is now at the stage where he needs BiPAP 16 hours a day, noninvasive ventilation, and BiPAP 16 hours a day, he also now needs the Cough Assist.

Now the client is inquiring whether he should have a tracheostomy as the next step and could he then have 24 hours Intensive Care at Home nursing if he ends up with a tracheostomy. The client says that the MND, the neurology team and the respiratory team advises him that a tracheostomy wouldn’t be in his “best interest”, and that he should be thinking about palliative care and end-of-life care instead.

Now the client is obviously smart enough, he and his family are smart enough to do their own independent research.

Continuation...
https://intensivecareathome.com/why-a-tracheostomy-and-ventilation-improves-the-quality-of-life-for-mnd-motor-neuron-disease/

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