How Long Can You Survive with Ventilation and Tracheostomy?

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How Long Can You Survive with Ventilation and Tracheostomy?

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In today’s blog, I want to answer a question that we get quite frequently from our clients, but also people who are interested in our service and the question that I want to answer today is

How Long Can You Survive with Ventilation and Tracheostomy?

What a great question because obviously when somebody is having a mechanical ventilation and a breathing tube (endotracheal tube) in ICU, they can’t be weaned off the ventilator then the next step often is to perform a tracheostomy.

And that can lead to several outcomes. It could be a short-term measure to wean patients off the ventilator in ICU but it could also be a long-term treatment plan for somebody to potentially be weaned off the ventilator and the tracheostomy at home.

But it could also be a lifelong treatment option depending on the situation. For example ventilation and tracheostomy could be a lifelong treatment option for patients that have a C1 spinal injury, that have issues such as a motor neuron disease.

Or a tracheostomy could turn into a weaning plan at home for patients with Guillan Barre syndrome.

Or a tracheostomy and mechanical ventilation could become an option for patients for a better quality of end of life at home instead of approaching their end of life in ICU or a hospice. This could be an option for a patient with end stage COPD for example, also after lung transplant where a patient is having a rejection of a donor lung.

Most hospices wouldn’t be able to look after tracheostomy and ventilation anyways, hence intensive home care would be the much preferred option.

How Long Can You Survive with Ventilation and Tracheostomy?

So there could be a number of issues that could lead to lifelong ventilation and tracheostomy. It could also be sometimes an end of life situation where somebody needs ventilation and tracheotomy to prolong their life. Maybe only in the short-term, maybe only for a few weeks or for a few months, maybe they want to spend time at home instead of in intensive care and approach their end of life at home.

But with most of our clients, it’s definitely prolonged ventilation and tracheostomy, and they can live at home sometimes for many years to come and they can actually live a good quality of life in the comfort of their own home with basically having intensive care nurses coming into the home and providing the intensive care at home service 24/7.

This provides a genuine alternative to a long term stay in intensive care.

Again, there are no firm timelines around this. It can be sometimes weeks, months, and it can sometimes be many years. And again, with our clients, many of them report a very good quality of life. They can be at home instead of in intensive care and they can also be enjoying time around their family.

They can be going sometimes to school, they can be doing meaningful activities in their own home with their families. Again, sometimes it’s school university, sometimes it’s even work that they can do from home on the computer. You know, a lot of things are possible in this day and age at home that are not possible in intensive care.

So by going home with intensive care at home, with 24 hour nursing care, we can replicate the ICU just in a much nicer, in a much more family friendly and client friendly environment. And that can go on for many years sometimes.

So, we know of one gentleman in particular, he’s been on a ventilator for almost 35 years now. He sustained a C1 spinal injury when he was a child and to this day he’s still alive and he’s living a very good quality of life, even though he’s on a ventilator and he’s got a tracheostomy...

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