MY 52-YR OLD BROTHER'S STUCK IN ICU& ICU IS NO HELP WEANING HIM OFF VENTILATION. CAN HE GO HOME?

1 year ago
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https://intensivecareathome.com/my-52-year-old-brother-is-stuck-in-the-icu-the-hospital-does-not-want-to-help-anymore-with-weaning-him-off-the-ventilator-can-you-help-us-in-taking-him-home/

MY 52-YR OLD BROTHER'S STUCK IN ICU& ICU IS NO HELP WEANING HIM OFF VENTILATION. CAN HE GO HOME?

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In today’s blog post, I want to answer a question from one of our clients and the question today is

My 52-year old Brother is Stuck in the ICU & the Hospital Does Not Want to Help Anymore with Weaning Him Off the Ventilator. Can You Help Us in Taking Him Home?

Hi Patrik,

My brother is 52 years of age, the only medical problem he had was chronic heart failure and mild COPD. Five months ago, he had sepsis and the ICU doctors didn’t want to treat him. There was a delay in providing proper care and that cause him to have a respiratory infection and a crash and he ended up on a ventilator eventually with the tracheostomy.

Now he’s on the ventilator with the tracheostomy in a spontaneous breathing mode, but he can’t be weaned off the ventilator at all. He might have a few minutes off the ventilator, but he’s really struggling to keep it off for longer periods of time.

Therefore, he’s stuck in ICU at the moment and the hospital doesn’t want to help him anymore with weaning him off the ventilator and they want to stop treatment. Given that he’s only 52, we want to take him home. Instead, our goal is to remove the tracheostomy and getting him off the ventilator. Can you help us in taking him home?

Thank you so much.

From Marin.

Hi Marin,

Well, Marin, this is quite a common problem that we see across the board. Unfortunately, ICUs don’t want to continue treating. They need the ICU bed, but rather than looking at taking patients home with Intensive Care at Home, they want to stop treating. And unfortunately that’s the first step to end of life. And that’s where we can help you to take your brother home and continue treatment there.

Now, I wouldn’t know, at this particular point in time, whether he’s able to come off the ventilator or not, you haven’t shared enough information, but you know, in any case, if he’s been in ICU for five months now, it’s time for him to go home. He is probably depressed. He’s probably in a COVID infested intensive care unit. He’s depressed. He’s got no quality of life and it’s time for him to go home and set it up properly at home.

So the next step really is to give me a call and we can look into your situation. You are saying that you are in Sydney, Australia. You would be aware that at the age of 52, your brother would qualify for the NDIS (National Disability Insurance Scheme). And I think we should have a chat about the funding about Specialist Support Coordination, which we can help you with. I should say Specialist NDIS Support Coordination, where we can help you with. And then set up the funding, set up the team, set up equipment, talk to the ICU, making sure you get the right support at home for your brother, improving his quality of life. Making sure he’s out of an ICU where the ICU is full of COVID. And at home, there is no COVID, it’s a much safer environment, less infection risk, more quality of life. And you as a family, don’t have to go into ICU all the time. And again, you’ll be much safer off with not having COVID.

So I hope that helps. Let me know if there’s anything else you need, but I think the next step is for us to talk to you, talk to the ICU and take the next steps from there.

Thank you so much...

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