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End of Life Care at Home with INTENSIVE CARE AT HOME, Some Case Studies!
End of Life Care at Home with INTENSIVE CARE AT HOME, Some Case Studies!
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Patrik: Hello everyone and welcome to video podcasts of Intensive Care at Home, where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies, and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality care for our clients, and we also provide home TPN.
Today’s episode is about, “Palliative care at Intensive Care at Home”, and we want to talk about couple of cases that we had recently, that we looked after with palliative care at home instead of those clients being back in intensive care. I want to welcome our clinic liaison nurse, Cathy Dunlop. Hi Cathy.
Cathy: Hi.
Patrik: I want to welcome Vanessa Larsen, one of our CCRNs working for Intensive Care at Home. Hi Vanessa.
Vanessa: Hello.
Patrik: Thanks so much for coming on to the podcast. We had in 2022, we named them Nick and Jim, those are not their real names, ones we have been providing palliative care with Intensive Care at Home from day one. Last year’s palliative care cases with Nick and Jim were sort of drawn-out long cases where we believe we could do our best work by keeping those clients at home and have end-of-life at home with their families. We think that was really good work we’ve done. But before we look at those case studies, I really want to talk about where this all started.
I think the three of us, we have all worked in ICU for a long time and I think we had all identified that palliative care in ICU, there’s room for improvement. I’m sure we all have as a collective, not only the three of us, but many ICU nurses have heard many families in ICU, they would like to have their loved one at home for end-of-life care.
We have made this a reality, or we are making this a reality here at Intensive Care at Home. We’ve had palliative care cases at home in the early stages when we first started providing services in 2014. We have also provided palliative care to a lot of pediatric clients through the Royal Children’s Hospital here in Melbourne.
So, Vanessa and Cathy, if you want to share your experience from ICU to begin with before we look at our cases, what was your perception when you worked in ICU, how palliative care was done, and where did you see room for improvement? Whoever wants to start.
Cathy: I’ll start. From where I have worked in intensive cares, it seems that palliative care is not necessarily part of the plan of care for the patient, it becomes a decision towards the nearing end of life, when end of life is imminent in terms of inotrope use, et cetera. It’s not really palliative care, it’s end of life, very sudden end of life, where maybe palliative care should be starting more in terms of the client prognosis, discussion with the family much earlier on in the process so that everyone knows what to expect and everyone knows how to make the patient more comfortable rather than the goal being to, “Oh, just keep them alive at all costs.” Usually to the detriment of patient comfort and dignity and also the family because maybe they’re expecting something that is not viable. Sometimes on occasion we’ve done it a bit better, but usually not that well.
Patrik: Vanessa, what was your experience working in ICU with end-of-life care or palliative care?
Continue reading at: https://intensivecareathome.com/end-of-life-care-at-home-with-intensive-care-at-home-some-case-studies/
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