Is the NDIS Neglecting and Killing Ventilated and Tracheostomy Clients in the Community (Part 2)?

https://intensivecareathome.com/is-the-ndis-neglecting-and-killing-ventilated-and-tracheostomy-clients-in-the-community-part-2/

Is the NDIS Neglecting and Killing Ventilated and Tracheostomy Clients in the Community (Part 2)?

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Hi, it’s Patrik Hutzel from Intensive Care at Home, where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies. And where we also provide tailor-made solutions for hospitals and intensive care units whilst, providing quality care for long-term ventilated patients with tracheostomy and also with non-invasive ventilations such as BiPAP or CPAP, otherwise medically complex patients at home, including home TPN.

Now, a few weeks ago I made a video with a title, “Is the NDIS (National Disability Insurance Scheme), Neglecting and Killing, Ventilated and Tracheostomy Clients in the Community?”. And that’s a few weeks ago, the video had quite a large number of views, and I obviously had some feedback from clients, had some feedback specifically from NDIS support coordinators, and they all agreed that the NDIS is clearly neglecting and potentially has an agenda to let people with ventilation, tracheostomy die so they don’t end up paying for them.

So clearly there seems to be a misaligned agenda from the NDIS in going down that track. Clearly, we have seen over the years that if NDIS participants with ventilation and tracheostomy don’t get funding for 24-hour nurses with intensive care nursing skills, that they are dying because we’ve seen clients where the clients were only funded for the night shift. For example, ventilation tracheostomy, and they were left during the day with parents or with other family members or with support workers, disability support workers that couldn’t manage medical emergency that inevitably happen with ventilation and tracheostomy, and then patients died at home because medical emergencies could not be managed by lay people and by the time the ambulance arrived, the patients had already deceased. This is tragic beyond words, absolutely tragic beyond words, and I hope that those clients at the time have not died in vain because obviously the NDIS seems to be busy sweeping it under the carpet whereas we are trying to bring it out to the open here at Intensive Care at Home because money should not be a determining factor whether someone can live or die.

But obviously that seems to be the agenda of the NDIS at the moment. Clearly people within the NDIS when we talk to them, they have no clinical background. They have no ethics morals, they have no research or evidence-based papers to stand or to justify their decisions, why a ventilated tracheostomy client cannot have an ICU nurse 24-hours a day. Clearly it’s a win-win situation. Otherwise, those patients or clients end up back in ICU where the taxpayer funds a $6,000 per day ICU bed that can’t be used for somebody else.

And in the community with our service, for example, that saves around 50% of the cost of an ICU bed, and we are maximizing quality of life and quality of end of life for our clients and their families in the home. So by the same token, as much as I have things to say about the NDIS, I do believe the Department of Health need to come to the party as well. Because whilst our clients technically have a disability that leads to significant health issues, I do believe whether it’s the NDIS or the state departments, they need to communicate to each other how to free up ICU beds with our service Intensive Care at Home. Because clearly, we can provide a win-win situation for all stakeholders.

Continuation...
https://intensivecareathome.com/is-the-ndis-neglecting-and-killing-ventilated-and-tracheostomy-clients-in-the-community-part-2/