Not Knowing How To Get the Best Solution For My Husband on Long-Term Ventilation & Slow Wean in ICU!

https://intensivecareathome.com/not-knowing-how-to-get-the-best-solution-for-my-husband-on-long-term-ventilation-slow-wean-in-icu/

Not Knowing How To Get the Best Solution For My Husband on Long-Term Ventilation & Slow Wean in ICU!

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Hi, it’s Patrik Hutzel from intensivecarehotline.com with another quick tip for families in intensive care.

So today’s tip is about another success story that we had with one of our clients. So I was actually talking to a client yesterday who was in ICU from September 2021 to December 2021 for over two months. At the time, this lady was 46-years of age. She was in ICU with Lupus and COVID and she was on a ventilator with a breathing tube, was on high doses of inotropes. She was in kidney failure and things were looking pretty grim. Her sister at the time reached out to me asking for help and lo and behold, we went on a call with the ICU team who, was painting this doom and gloom narrative, was painting this doom and gloom picture and saying that, her sister won’t improve and that she will not survive intensive care and any treatment would be futile.

Now, that was in the absence of an advanced care plan, i.e. her sister did not have documented what she would want in a situation like this if she ever went into ICU and was life support dependent.

Anyway, what we also did at the time, we educated the family on an option of the tracheostomy, which the hospital at the time conveniently withheld from the family. They didn’t even tell the family that tracheostomy was an option to prolong life. One could argue that they were deliberately misleading the family.

So, what happened next was, we also reviewed medical records at the time and what we did was again, looking at medical records and saying, well, this lady needs to be given a chance and the longer they keep her in an induced coma, the more damage will be done.

Now, while we were looking at the medical records, took another three or four weeks for this lady to get a tracheostomy because the hospital was deliberating on it couldn’t make up their mind. In the meantime, she was heavily sedated in ICU, meaning every day in the induced coma, she was deconditioning and she wasn’t being moved and her muscles were deteriorating. She was deconditioning and only four weeks later, she had the tracheostomy, even though when you look at the research, tracheostomy should be done after about day 10 to 14 of mechanical ventilation in intensive care, assuming someone can’t be weaned off the ventilator.

So, yesterday I had more or less a debrief call with this lady who was a patient at the time. It’s nearly two years later. She’s now at home. She’s living at home. She’s on a BiPAP machine, but she is living at home more or less independently. And that is in spite of the hospital saying at the time and also documenting in medical records that this lady will not survive intensive care.

Continuation...
https://intensivecareathome.com/not-knowing-how-to-get-the-best-solution-for-my-husband-on-long-term-ventilation-slow-wean-in-icu/