Ask the Nurses Podcast 88 The jones family Jennifer, Ryan, and Ryleigh

Ryleigh Jones was a happy, lively, normal 8-year-old girl until she received the Covid vaccine.
March 23rd, 2022 Ryleigh lost feeling and ability to walk. With the diet change she has begun to walk again but the limbs have no sensation. Ryleigh no longer feels when she urinates. This is a tragedy to her Mom and Dad.
Between the 15th of February and April 20, 2022 Ryleigh has been admitted to VCU Health system 11 times and they have been unable to diagnose her properly. They say that Ryleigh has a disorder called Functional Neurological Disorder. We do not believe this to be true as she is only 8 years old and this diagnose would be unheard of at this age.
Ryleigh has been through extensive medical procedures such as EEG, MRI and a lumbar puncture which have all come back clear.
We still have no diagnosis for our beautiful loving girl. If you’ve known Ryleigh you know that she’s loved life, school, friends, baseball, and dance.
Ryleigh has suffered significant memory loss to the extent some times she doesn’t remember her dad and I or her family and beloved dog Buddy.
Ryleigh had the COVID Vaccine January 6, 2022 and was diagnosed with COVID on January 12th. During COVID she had a straight 48 hour fever and lethargy.
On March 24th, we took Ryleigh to Johns Hopkins Hospital where we were quickly shut down because they pulled our record from VCU Health System, so they were unable to truly do an extensive workup on Ryleigh. JHH was not much help to us other than running tests that suggest Ryleigh may have Porphyria and Celiac disease.
As of 4/25/2022 - Ryleigh has improved slightly because we made significant changes to her diet. Gluten Free foods and plant based organic foods is all that Ryleigh is able to eat as of now. As you can imagine for an 8 year old this has been significantly challenging.
We have several upcoming outpatient appointments coming up to further determine what damage has been done to our loving little girl.
Ryleigh's blood work has not been explained to us and there are no explanations for the reasons that her SED rate and CRP and other tests are elevated.
Please consider helping us figure out what is happening with our child. We have accumulated over $13,000 in medical bills and her treatment is ongoing and we may also have to have an attorney in the future.
Thank you and hug your child tight because tomorrow may not be the same.
https://givesendgo.com/ryleigh